Please be aware Sarah has chosen to share pictures of baby Dainton-Lee with her story.

Dainton-Lee was my firstborn son. On 22nd August 2013 | went into sudden labour at 33 weeks pregnant, I went straight to hospital where I was put on monitors. Within minutes I was rushed down to theatre for an emergency C-section because Dainton-Lee's heart rate was dropping rapidly. 

I had nurses and doctors prepping me for theatre whilst wheeling me down, all I remember is going through the theatre doors crying then I was asleep. Dainton-Lee was born at 9.47am weighing 3lb 11 oz and he was struggling to breathe. 

Doctors moved him quickly to neonatal (NICU) where he was put on a machine to help with his breathing. When I saw him a few hours later in his incubator so fragile, with wires and tubes everywhere my heart shattered. 

Day two in the morning I was woken by the doctor because Dainton-Lee had to be transferred to another hospital. He went in an ambulance with blues and sirens going to a level three care hospital because he needed the highest level of care. I followed in a second ambulance. 

My brave little fighter continued to battle on in NICU (Neonatal Intensive Care Unit) 

He had numerous amount of lines going through his belly button and machines to help with his breathing. 

As the days passed Dainton-Lee was slowly deteriorating, which was absolutely heartbreaking to see. After 10 days of him fighting for his life, numerous tests, heart scans, gases and blood tests, I agreed to turn his machines off as there was nothing more the doctors could do to save Dainton-Lee's life and the fairest thing to do was to let him fly with the angels. 

As the nurses and doctors started taking his tubes out and decreasing all his medication, I was finally allowed to give my son his first cuddle, but at the same time I was saying goodbye. By this point I fell to pieces. 

Within five minutes on the 2 September 2013 at 1pm Dainton-Lee gained his angel wings, and I felt like my heart had been ripped out. 

I spent a few hours with Dainton-Lee cuddling him, talking to him, telling him things we would have done, then got him dressed for the first time. Feeling empty inside, I then put Dainton-Lee in his cold cot and went back to my room on NICU and cried like I never have before. 

The following morning after no sleep and still everything feeling surreal, I went back to see my baby to say my final goodbyes. I sat there for hours and hours in silence just cuddling my boy, before giving him a final kiss goodbye. I tucked him back in his cold cot with his teddy and blanket. As I left the room I fell to my knees crying my eyes out. 

When the post-mortem came back, I found out that Dainton-Lee died from TAPVD (Total Anomalous Pulmonary Venous Drainage) a very rare heart condition, Severe Pulmonary Hypertension, Severe Lung Disease, Surfactant Deficiency and Sepsis which was all the way through his tiny body and organs. 

As any parent would feel I was left mortified and completely heartbroken, by far this has been the most traumatic time of my life.